Patient organisation
Stowarzyszenie Rodzin z Chorobą Fabry'ego
AdultsMetabolism and nutrition disordersNervous system disorders
About the organisation
Stowarzyszenie Rodzin z Chorobą Fabry'ego (Association of Families with Fabry Disease) was founded in 2002 with the primary goal of integrating families affected by Fabry disease. The association is dedicated to supporting these families and plays a crucial role in advocating for improved access to existing therapies for all patients. They actively work to shorten the path to treatment, ensuring that individuals with Fabry disease can access the care they need more efficiently.
Areas of specialisation
Where this organisation focuses its support
Diseases & conditions
Therapeutic area
Age groups served
Adults
Organisations in the same therapeutic area Partners active in Metabolism and nutrition disorders
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