The Neurofibromatosis Poland – Alba Julia Association has been operating since 2006 and supports people with phacomatoses (including Neurofibromatosis type 1, Neurofibromatosis type 2, Sturge-Weber syndrome) and their families. It welcomes children, adolescents, and adults. The association organizes community integration, educates doctors and the public, and works to improve access to modern therapies, consultations, and rehabilitation.