LMNA Cardiac Diseases Network

LMNA Cardiac is a global organization and support network for people with heart conditions caused by mutations in the LMNA gene, particularly dilated cardiomyopathy and cardiac rhythm disorders. It supports patients with confirmed or suspected LMNA mutations, as well as their families and caregivers, by connecting them with experts, researchers, and clinicians. The organization provides reliable information on the condition, symptoms, diagnosis, and treatment, along with updates on clinical research, educational materials, and patient resources. It also serves as a community and research platform, facilitating patient connections, support events, discussion groups, and opportunities to participate in clinical studies.


Organisation website:
https://www.lmnacardiac.org/