HAE

HAE Junior is a Czech non-profit patient organization established in December 2019 by a group of parents in Prague. Its core mission is to improve the quality of life for children and young people suffering from Hereditary Angioedema (HAE), a rare and potentially life-threatening genetic condition. HAE Junior implements various projects such as educational workshops, inclusive scholarships, summer camps for the patient community, and awareness-raising exhibitions.


Organisation website:
https://haejunior.cz/homepage/