Eesti Fenüülketonuuria Ühing | European Clinical Trials Information Network

Eesti Fenüülketonuuria Ühing

PKÜ Eesti MTÜ, also known as the Estonian Phenylketonuria Association (Eesti Fenüülketonuuria Ühing), is a non-profit patient organization dedicated to supporting individuals with Phenylketonuria (PKU) in Estonia. Founded in 1994, the association serves as a crucial resource for the PKU community. Its primary role involves providing support and information related to this rare metabolic disorder.

Organisation website:

https://www.pku.ee/

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